4-12-12 Thursday
Met with Dr Hernandez today. He's optimistic that radiation can help shrink the tumor.
Monday next week Mom has a CT scan, they call is simulation, as she will be in the position for radiation. The Sr then has to mark every slice of the scan to show the computer the good tissue and the tumor. This process will hopefully protect the good tissue.
Then she will start treatment in about 2 weeks. Her treatment will be everyday, Mon through Fri, for 30 visits.
Keep your fingers crossed that it will shrink the tumor enough to allow Dr Sateya to perform the Chemoimobilization.
Friday, April 13, 2012
Wednesday, April 11, 2012
No more Chemo
4-11-12 Wednesday
Well, today was to be the start of round 2 on Mom's chemo. As you all know she was in the hospital until Monday night of this week. She missed an appt with her chemo Doctor on Tuesday due to being behind on mail. So when she showed up for treatment today they shuffled her over to see the Doc.
Dr. Isa told Mom that the chemo treatments weren't working and they are going to discontinue chemo treatment. How do they know that this second round wouldn't have made the difference. Seems to me like they don't want to waste their time with her.
Tomorrow at 11am we will finally meet with the radiologist for a consultation. I'm hoping that that isn't a closed road too.
Keep Mom in your prayers.
Thanks...
Well, today was to be the start of round 2 on Mom's chemo. As you all know she was in the hospital until Monday night of this week. She missed an appt with her chemo Doctor on Tuesday due to being behind on mail. So when she showed up for treatment today they shuffled her over to see the Doc.
Dr. Isa told Mom that the chemo treatments weren't working and they are going to discontinue chemo treatment. How do they know that this second round wouldn't have made the difference. Seems to me like they don't want to waste their time with her.
Tomorrow at 11am we will finally meet with the radiologist for a consultation. I'm hoping that that isn't a closed road too.
Keep Mom in your prayers.
Thanks...
Monday, April 9, 2012
Coming home again
4-9-12 Monday
Mom's INR count came down relatively quickly after 6 units of plasma on Saturday.
Today the installed the filter in femoral artery so that she doesn't have to be on coumadin or any other major blood thinners.
He was released around 6:30pm, after seeing the radiologist. He gave her his direct line to call and reschedule for Thursday.
Mom's INR count came down relatively quickly after 6 units of plasma on Saturday.
Today the installed the filter in femoral artery so that she doesn't have to be on coumadin or any other major blood thinners.
He was released around 6:30pm, after seeing the radiologist. He gave her his direct line to call and reschedule for Thursday.
Friday, April 6, 2012
Good Friday in the ER
4/6/12 - Good Friday
Mom's primary doctor called this morning to tell her to go to the hospital via ambulance. Her INR is very high, meaning her blood is dangerously thin.
They will be admitting her to stabilize her blood levels. They will then decide to either put her on blood thinning shots 2x a day or install a filter in her artery. They will also replace her drain while she's here.
Mom's primary doctor called this morning to tell her to go to the hospital via ambulance. Her INR is very high, meaning her blood is dangerously thin.
They will be admitting her to stabilize her blood levels. They will then decide to either put her on blood thinning shots 2x a day or install a filter in her artery. They will also replace her drain while she's here.
Monday, April 2, 2012
Chemo treatment update
4/2/12 - Monday
Ok, I know it's been a long while since I last posted any updates or info.
So 3/21 was Mom's first chemo treatment and surprisingly enough, she tolerated it very well. Of course she was tired for a few days afterwards, but she also doesn't know how to "slow down"...
The following wednesday was her second treatment and again, she did very well. She's been making the twice a week trip to the bowling alley to visit with their friends, but last Thur night she stayed home. She said she was really tired.
Mom still has a lot of spunk, but she's still loosing weight. So much so that her doctor has prescribed Carnation protein drinks. Problem is, she's on Coumadin and can't have vitamin k. The carnation drinks have quite a bit of vitamin k in them. No need to worry, I have her all set up with Herbalife protein shake mix and some added soy protein powder. Neither of them have vitamin k. She loved the chocolate/banana shake I made up for her tonight.
Tomorrow is her chemo day, but this is her off week. She will resume these 21 day cycles next Wednesday.
Monday 4/9 is her radiology consultation. She missed last weeks appointment. Since she missed her appt, I've taught her how to use her smartphones calendar for appt's.
On a side note: I bought mom & Kent (dad) matching magnetic bracelets.
Mom reports that her tumor pain has decreased since wearing it and dads pinky finger (arthritis) doesn't bother him anymore. I don't care if it's subliminal or real, her having less pain is worth it.
Later....
Ok, I know it's been a long while since I last posted any updates or info.
So 3/21 was Mom's first chemo treatment and surprisingly enough, she tolerated it very well. Of course she was tired for a few days afterwards, but she also doesn't know how to "slow down"...
The following wednesday was her second treatment and again, she did very well. She's been making the twice a week trip to the bowling alley to visit with their friends, but last Thur night she stayed home. She said she was really tired.
Mom still has a lot of spunk, but she's still loosing weight. So much so that her doctor has prescribed Carnation protein drinks. Problem is, she's on Coumadin and can't have vitamin k. The carnation drinks have quite a bit of vitamin k in them. No need to worry, I have her all set up with Herbalife protein shake mix and some added soy protein powder. Neither of them have vitamin k. She loved the chocolate/banana shake I made up for her tonight.
Tomorrow is her chemo day, but this is her off week. She will resume these 21 day cycles next Wednesday.
Monday 4/9 is her radiology consultation. She missed last weeks appointment. Since she missed her appt, I've taught her how to use her smartphones calendar for appt's.
On a side note: I bought mom & Kent (dad) matching magnetic bracelets.
Mom reports that her tumor pain has decreased since wearing it and dads pinky finger (arthritis) doesn't bother him anymore. I don't care if it's subliminal or real, her having less pain is worth it.
Later....
Wednesday, March 21, 2012
Chemo day 1 - Cisplatin
3/21/12 - Wednesday
Mom starts systemic chemo today with only one drug, Cisplatin. Her bilirubin count is still too high for them to use a cocktail of 2 drugs ( cisplatin + gemzar ). Once her counts are low enough or she shows she can tolerate the cisplatin, try will introduce the gemzar.
Mom is looking forward to starting her treatment too.
Yesterday we saw her primary doctor, Dr Sayeed. Very nice lady that loves mom. She's very hopeful that the treatment works.
Mom has a consult with Radiation this coming Monday at 9am. We are both hoping that they can do some radiation on the right side of her tumor to clear it away from the veins so that Dr Satya can try the chemoimobilization again.
Stay tuned, more to come!!
Mom starts systemic chemo today with only one drug, Cisplatin. Her bilirubin count is still too high for them to use a cocktail of 2 drugs ( cisplatin + gemzar ). Once her counts are low enough or she shows she can tolerate the cisplatin, try will introduce the gemzar.
Mom is looking forward to starting her treatment too.
Yesterday we saw her primary doctor, Dr Sayeed. Very nice lady that loves mom. She's very hopeful that the treatment works.
Mom has a consult with Radiation this coming Monday at 9am. We are both hoping that they can do some radiation on the right side of her tumor to clear it away from the veins so that Dr Satya can try the chemoimobilization again.
Stay tuned, more to come!!
Tuesday, March 13, 2012
Discharge Day!
3/13/12 - Tuesday
Mom called me at 1:15 to tell me she's being discharged today. Well, we all know what that means, hurry up and wait. I got there at 2:30, packed up her stuff and took 3 bags, 2 coolers, 2 pillows & laptop to truck.
We finally walked out the front door at 4:15.
We are now waiting at the JPS pharmacy for 9 prescriptions!!
She's very excited to be almost home.
Mom called me at 1:15 to tell me she's being discharged today. Well, we all know what that means, hurry up and wait. I got there at 2:30, packed up her stuff and took 3 bags, 2 coolers, 2 pillows & laptop to truck.
We finally walked out the front door at 4:15.
We are now waiting at the JPS pharmacy for 9 prescriptions!!
She's very excited to be almost home.
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